Journal for Monday 25th October
Got off to a pretty ropey start to the week with an upset stomach followed by a bout of constipation which, fortunately, cleared by mid-morning. Walked the dogs and popped out to little Tesco. Boy do I have a glamourous life.
Started one of my hobby purchases from yesterday, an Airfix model of a Spitfire. Commenced operations with a bit of painting. The paint they use these days seems pretty good, better than I remember anyway. I'm taking my time because I have lots of time but also to see if I have the patience to spend the time wisely and get it right. We will see.
Received email that I really didn't want to get and has made me pretty upset, spoiling what was a good few days of upbeat mood. Oh well, such is life. What was it I wrote the other day? Oh, yes, the other shoe dropped. Big style!
Tuesday 26th October
The air fix modelling is actually going better than I thought it would. I have obviously developed a layer of patience that I didn't know I had. The damn thing actually looks like a Spitfire and I haven't dumped any of the parts as too fiddly.
Off to a better start this morning. Looking forward to visitors today and twitter "show and tell". "Show and tell" sounds better than teaching and is probably closer to the mark of what is going to happen.
My iPad stylus arrived today in the mail so I tried to do a bit of artwork with it. My other hobby purchase at the weekend was a step by step drawing book from "The Works" which was on a massive reduction in price. My first effort was an eagle which has turned out to look more like a dead parrot (as one kind friend put it) than an eagle. That said it's probably the nearest thing to artwork that I've ever managed. I need a stylus that's got more of a pen like nib. Might need a trip to Leicester and the Apple shop.
Popped out to get sugar and milk from little Tesco before visitors arrive. And they are out of sugar. How pants is that!! How can a Tesco shop run out of a staple like sugar? Makes no sense given the way they operate on technology and daily stock fills. I sound like a grumpy old man, LOL!
Twitter "show and tell" went really well I think. I did get a round of applause from my audience of two. I thoroughly enjoyed myself and my guests appeared to really appreciate the effort I had gone to. It certainly made my day go well. It's almost 4pm and I'm just kind of winding down from it and about to sit down with a well deserved cup of tea and my gadget magazine. I feel like I've been in the zone which I was talking about last week. I ought to see if I can offer the same course to a couple of colleagues, seems a shame to waste the preparation on one delivery. My guests also asked if I'd look at doing something similar with LinkedIn. That is definitely something I can look at after my chemotherapy session on Thursday.
I know that I really have to do it, but I am so not looking forward to this round of chemotherapy. I think anyone who's had five sessions would probably have the same mixed feelings that I have. On the one hand you know that you need to do this as it's the best thing for you medically and the payback is the life extension it buys. The downside is that you know what's coming in terms of side effects. It's like standing up waiting to be run over by a truck. Which reminds me of an "It's a Knockout" game that used to make me roll around on the floor with tears of laughter running down my face. It was the game where the victim, wearing a blindfold, pushed a punchbag on a long rope at human targets set on plinths, guided by a team-mate shouting things like left, left, bit more left, fire. All well and good for firing but the hapless victim then has to stand there, arms open wide, unable to see because of the blindfold while the punchbag comes back and almost flattens him. He knows it's coming, he knows it's going to be a shock and that it's gonna hurt but he stands there and takes it anyway. That's how I'm feeling about my final session of chemotherapy!!!
A difficult conversation with Mum last night. Whilst she is not very religious she's convinced herself that all I need is faith and I will come through this. I guess we are at polar ends of this issue. Mum is at the faith end of the argument and I'm at the reality end of it and we need to meet somewhere in the middle. My attempt at the middle ground is my fight to beat the prognosis and give myself as much time as possible. Unfortunately Mum wants to believe that my fight will overcome, thus her argument is that essentially there is a miracle in my future. There is no middle ground she can reach for or that I can help her towards if she insists on maintaining her current beliefs. That's potentially going to make it hard for us later on down the line.
Wednesday 27th October
On the news this morning one of the lead stories was a guy with either prostate cancer or testicular cancer who has had 67 chemotherapy treatments. That must have been hell on earth. Makes my whinging after six sessions look pathetic, although I suspect it wasn't 67 overnight sessions.
A busy day of appointments, starting with blood test first thing. Had a nice chat with the nurse, although she was on the side of not pushing for the final chemotherapy session if you thought several weeks of recovery were not worth the payback in terms of life extension. The unknown of course is what is the payback in terms of life extension. Who could possibly know that with any degree of certainty other than my oncologist perhaps and then it's only an educated guess. So although my position remains that I'm not looking forward to this final round of chemotherapy, I know I just have to face it and get on with it. I do believe that it will give me more than the 4 weeks it's going to take out of me. I have to believe that, I have no option now. And I have some faith that my oncologist would have steered me away from it if it was the wrong thing to do. The other killer argument is that I will never reach a point where I'll be saying I wonder what would have happened if I had taken that last round of chemotherapy.
Meeting with my solicitor about putting my affairs in order and then on to see my oncologist. The meeting with the oncologist is the one in the schedule I always wonder about because he really has nothing to tell me as we have no new scan to review. At least I know he isn't going to drop my mood with another comment about improvements, or lack of, in the state of my tumours. I wonder if there is anything he can do for my taste buds, stomach (vomiting) or the constipation (caused by the morphine). This far in and having raised the issue a few times I suspect that there is nothing more he can do.
Not much to report from oncology appointment other than the Doc said the constipation is likely to be the anti-emetic I'm on called Ondansetron, which I will be coming off post chemotherapy. This is really great news if it's correct and given that we have always thought it's the morphine which I won't be coming off anytime soon. Chemotherapy six is definitely on tomorrow.
I have been hankering after some pease pudding for while and finally found some in Morrisons so stopped on the way to the oncology appointment to pick some up. Had the best tasting meal I've had in ages as a result - Ham & fried eggs with chips and pease pudding. How very northern!!!
Was pretty exhausted from being on the go all day without a nap. So although I felt dreadful at having to postpone a visit from an old friend today it was probably the right move. The annoying bit is I spend loads of time wishing I was a bit busier and then I get days which are just non stop.
Thursday 28th
Chemotherapy day six. Up early to make flasks of shaved ice to bring with me to the hospital. I'm using my Little Snowie less and less of this as time goes on, but I've definitely had my money's worth out of it.
Arrived for my chemo in plenty of time but my room wasn't ready so had to wait in one of the rooms for day patients. Finally got into the room and needle inserted. The nurse could not get the drip to work properly so after some messing about the RMO came to resite the needle promising me that this would hurt. It didn't. The nurse then came back with a vitamin injection for the bum. That was ruddy painful.
For some reason the day is dragging. Tomato soup and a roll for lunch which I promptly threw up. Now feeling sorry for myself. Just want the day to be over. The afternoon just disappeared on me in a haze. Fell asleep until woken by visit. Fell back to sleep and slept through the night with the exception of disturbances to change the banana bags. The treatment finished about 4am, the needle removed but back to sleep until about 5:30am.
Friday 29th
Woke up at around 5:30am feeling cold, clammy and sick. Spent the rest of the time waiting for my lift home retching without actually being sick. Felt pathetically grateful just to get out of there and head home. Got unpacked and poodled around for a bit trying to wait for my stomach to settle a bit and to be tired enough for a nap.Had a hot shower, put on clean clothes and then napped on and off through the day. Feet feeling very cold so I am wearing two pairs of socks. Again the day feels like it's disappeared on me.
My best friend has dipped her toe into water with Twitter and Blogging after the "show and tell" from earlier in the week. Very proud of her and a little bit proud of the help I was able to give to get her started. And then she up and wrote her first blog post as a tribute to me. You can read the post she made here...
I wrote a tweet to say that at the end of the day we are defined by the friendships we have made along the way but that only goes part of the way to say how much my friendship with Heather means to me. I am not ashamed to say I cried when I read what had been written. There are many acquaintances that one makes in a lifetime but true friends are hard to come by and I have been very fortunate. I do have some wonderful friends who have been here for me from the moment my news got out. I hope you all know what a difference your support means to me and will mean to me over the coming weeks and months; and with a bit of luck, a following wind and my mum's forecast miracle, years.
Saturday 30th
Sleep cycle pretty shot from all the sleeping at hospital and possibly being back on the steroids. Anyway up at 2am-ish for a bit and wide awake at 5am-ish. Feel quite tired but surprisingly my head feels less mushy than I recall at this stage in previous cycles. Wonder if it will last? Lots of falling asleep in the chair during the day.
Had yet a further evening nap but got up in time for Strictly and X Factor. On the X factor I don't think my favourite had his best week, but Matt still did enough to get through to next week. My second favourite, Rebecca, was stunning. And Cher finally showed some of what she has promised but so far failed to deliver. Interesting that she had to drop the rap to do so! Wagner and Aidan were my least favourite acts.
Sunday 31st
Have a feeling that fatigue is likely to be the order of the day and desperately hoping that my mood doesn't drop. Clocks have gone back, fortunately I only have a couple round the house that need to be done manually. I'd like to go to the Apple Shop in Leicester and see if I can sort out a decent stylus but other than that there isn't much that I have in mind for the day and frankly, the stylus could wait.
Yes, fatigue definitely has a grip.
Ended up with a short trip to the local garden centre, more for the poodle than wanting anything at the garden centre. Back home, more sleep, some dinner, falling asleep in the chair. Feeling at a very low ebb, partly because I know how rotten the coming week is going to be. Time for bed.